Elias M's quilt    (Quilt Closed)

Theme details

Superheroes -

Child Interests

Loves emergency vehicles, super heroes, Lego and soccer. Favourites are red and blue.

Biography

Elias was diagnosed with hypo plastic left heart syndrome at a routine 20 week ultrasound . He was basically missing the left ventricle or pumping chamber of his heart. Following his first open heart surgery at 6 days old, he encountered many complications and lengthy hospital stays until he had his second open heart surgery at 3 months of age. He managed quite well with his compromised anatomy until his heart began failing at 3 years of age.

He was scheduled for a third “easy “ surgery to allow him to have circulation to his lower extremities. During this surgery, Elias experienced a catastrophic stroke, requiring a hemicraniectomy, or removal of half of his skull . He was left with paralysis on the left side of his body, was unable to speak, swallow or hold his head up. He required 7 subsequent brain surgeries to remove excess fluid from his brain before his skull was replaced.. He spent three months in hospital, and another three months in a rehabilitation hospital before coming home. He continues with frequent follow up appointments to various specialists to support his regaining the ability to walk, swallow and see well. He attends grade two with the support of an EA and works tirelessly to be as independent as possible.

Patterns

Squares received